AWOL

The past few days have been difficult. My energy levels have been very low and pain levels quite high. Partly due to the delay in getting medication and mostly because that's just the way my condition rolls. It's shit. Hence no journal entries for the past few days with no silver linings to have the energy to write about.

I haven't made it to bed for a few nights but slept deeply on my super sofa but waking feeling no better for sleep - the joys of fatigue. I've done as much as I can, small things with the help of Paul & Connor who are always super support.

My neuro physio is also moving on to greater things which is awesome and I am so pleased for her but anxious about starting again with someone new. I wish her all the best in her new adventure, but there's that nagging fear of explaining everything from scratch to someone who doesn't know my body's quirks yet.

I've been pacing myself carefully with the help of my Visible app and band.

 

 

 

 

 

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A post shared by Sha Taylor (@wheelyhappydays)

Paul took me out in the sunshine yesterday to see the VE crochet on Burntwood's statue Scamp. Little outings that feel like massive achievements these days.

I've rested, because I've had to, but tomorrow I'm going to spend some extra spoons. I know I'll suffer the consequences but I don't want to miss the day. Connor's best buddy Will (who we've known since nursery) is getting married. I can't believe they are all grown up, time flies by so quickly.

I'm honoured to be invited to his special day and look forward to sharing this joyful occasion, wheelchair and all.

Today's intentions:

• To rest, ready to enjoy Will's big day
• To spend quality time with Connor & Paul
• To be honest with myself, and take time out when I need it

Three Good Things:

• Wedding bells and celebrating love
• I've a great frock ready (and it works sitting down!)
• Paul & Connor's support as always