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Thursday 15th January 2026 - The Ellyllons Strike Back

A majestic cat wearing sunglasses and a crown, riding a sparkly unicorn through a cosmic galaxy background, because why the hell not? The text reads 'Giddy up sparklefarts, we got fuckery to spread.' This is exactly the energy I had yesterday before the Ellyllons decided to teach me a lesson about consequences. This cat gets it.
Giddy up Sparklefarts

Not today, beaut.

‘Someone’ overdid it yesterday 🙄 and we all know, I know; actions have consequences. I hurt from my fingers right down to my tippy tiny toes with FM and FND pain, twitches, and tremors. My nervous system that’s backfiring, causing searing ‘shooting’ pains to remind me it’s still there to punish me for my stupidity, I can barely keep my eyes open. Shocking, I know. Who could have possibly seen this coming?

I’m a little frustrated and emotionally drained.

Dadio has caught MRSA, so his pre-op dental treatment has been pushed back, because he has to be free of MRSA before that, ready for his heart op. And yes, you’ve guessed it: because I have a weak immune system, I’m unable to visit the old fellow. That really upsets me, as I’m not able to see him and support my family at such a heartbreaking time (pardon the pun). Apparently, 2026 decided we hadn’t had enough medical drama in our lives in 2025 and thought, “You know what your family needs? More hospital stays and infectious diseases.” Brilliant.

💭 Oh, to live an uneventful, boring, healthy life!

He’d best watch out when I do get to see him, because I’m going to cwtch him so much he’ll be begging me to leave!

Otherwise, yesterday was such a good day. I felt good about myself. With help, I got up, washed and dressed in ‘proper clothes’ and rocked a beautiful pink wig (my hair is thinning and falling out (the joys of menopause). I left the house to get my lashes done! (My one monthly pleasure in life). Look at me, living like a normal human being. What could possibly go wrong?

Me rocking my beautiful pink wig (because my hair's being a menopausal twat and thinning out) and my INDIE KID t-shirt, looking absolutely chuffed with myself. Fresh lashes courtesy of Hannah, proper smile, feeling like a million quid. This was taken yesterday when I felt GOOD and decided to ignore all common sense about pacing. Past Sha had no idea what Present Sha was going to go through. Past Sha was an optimistic fool.

But my downfall… I did a couple of chores and a couple more. I popped into the Creative Burntwood Launch event. I peopled with friends and people I’ve not seen for ages, including my brother, and sang with the Burntwood Community Choir. I had such a great day, I loved it.

The bright green and pink Creative Burntwood Event Venue banner outside Chase Terrace Community Centre in the evening. 'Proud to be a creative' it says at the top, along with their website creativeburntwood.com. This is where the magic (and my subsequent downfall) happened yesterday. Brilliant organisation, wonderful people, absolutely knackering for someone with FND. Would do it again though. Probably. Ask me when I can see straight.
nside Chase Terrace Community Centre during the Creative Burntwood launch - a proper busy community hall with gorgeous high ceilings and exposed beams. People are milling about, chatting, and doing that lovely 'peopling' thing. You can spot yours truly in my wheelchair, pink hair and all, sitting at a table. There are balloons, folding chairs, and that brilliant buzz of community happening. This is what I overdid it for, and honestly? Worth every spoon I spent (even if the Ellyllons are making me pay for it today).

But it became quickly apparent when I got home; I’d fucked up. I quickly became physically, mentally, and emotionally exhausted on every level. I felt so well yesterday that I ‘forgot’ (kinda ignored) the consequences. I felt almost like my old self, and I ignored the Ellyllons that were lying in wait to punish me for doing normal, everyday things like I used to.

Funny how they never forget, though, isn’t it?

I’m truly wiped out. I guess I knew I would be. You’d think I’d learnt the importance of pacing on my Wheely Good days. They are like gold dust.

Spoiler alert: I haven’t. My Ellyllons have taken back the reins and are kicking back at me like a mules on a mission. I should have listened to Paul and Connor and rested more during the day. I don’t think the “but I felt so well and wanted to live the day to the full” excuse will cut it. Turns out “living life to the full” when you have multiple chronic illnesses (my Ellyllons) means paying for it with a high rate of PEM and pain interest for the next few days. Cheers, brain and body.

My eyes are heavy and sting when I blink. Not that I can see through blurred vision, and it’s challenging to know which way to look when you can see two of everything. (Double vision - because one version of this mess I’ve caused myself wasn’t enough, apparently). Thank you to Paul and the tools on my phone for helping me get this written through the pain, tremors, and dodgy vision.

So, I have a very painful day of bed rest ahead of me today, as I am determined to chair tonight’s planning meeting. I can’t bear letting anyone else down.

I feel like I’ve been trampled over by a cat riding stampede of unicorns, so it’s a pity party for one with a box of man-size tissues and the cats for comfort (Hannah will kill me if I ruin my lashes in less than 24 hours - imagine surviving an Ellyllons attack only to be murdered by my lash tech over eyelashes). Trying so hard not to cry, but I’m feeling disappointed, angry at myself and upset for being such a twat. I know better.

Take it from me, folks, good days are like gold dust. Just don’t make the same mistake as me and spend all your spoons in one go. Unless you fancy a crash course in regret and full-body pain. Which I apparently do.

Three Good Things:
Right now, I can’t think of a single bloody one. Maybe I’ll update this later when my brain’s working, and I’m not wallowing in self-pity and spite.

Today’s Affirmation:
“Rest is not weakness. My body is healing, and I am allowed to take the time I need”

Let’s face it, it’s my own fault. I’m getting my just desserts for trying to sparkle like a cat riding a unicorn, and because I know my PEM and my Ellyllons will make me pay for it.

Hope today brings you a good day full of happiness.

Love Sha 💜

#WheelyHappyDays #FND #MECFS #Fibromyalgia #ChronicIllness #PacingFail #KOKO #LessonsIWillNeverLearn

P.S. Paul asked me to record a short piece to camera, listening to his new track, as part of his social media promotion. And here's the thing - the tune makes me cry. Every. Single. Time. I've heard it loads over the last few months, but it still gets me right in the feels. I think the daft sod made it too beautiful. So I had to sit there with my already stinging eyes, blurred vision, and freshly done lashes (that I'm trying desperately not to ruin), and record myself having an emotional breakdown over his music.

But honestly? It's proper gorgeous. Even if it does turn me into a blubbering mess. That purple-bearded genius. 💜