Tuesday 10th June 2025
Dafydd (/Dai) Days (Welsh for David/Dave)
I've been going through a really rough patch at the moment with pain, migraines and fatigue like I've never known.
Today I woke around the usual time - 6am. I'm in our bedroom with the blackout blinds pulled tight because of the migraines, sharing the bed with two of the cats. The house was silent except for my tinnitus spoiling what should have been peace and quiet.
11am - I had the doctor call and he's referring me back to Neurology to assess for chronic fatigue syndrome, even though the call was supposed to be about something completely different. Then I fell asleep again.
3pm - I've only just woken up! I've done this a few times this week. My fatigue levels have ramped up so much I can't explain in words how it feels. It's like someone's pulled the plug on my entire system and I'm running on empty fumes that aren't even there.
Today's new terminology: So from now on I'm going to refer to days like this as 'Dafydd Days'. Which technically makes them David days, but it has a more positive ring to it than 'Dai days'. Some days you need to find a gentler way to describe the absolute exhaustion that's taken over your body.
Today's reality check:
- 6am - awake but barely functioning
- 11am - doctor's call, more medical referrals
- 3pm - finally surface from unplanned sleep marathon
- Current status - still feeling like I'm moving through treacle
Three Good Things (however small):
- The cats chose to keep me company in the darkness
- My GP is taking my fatigue seriously
- I have a new, kinder name for these impossible days
Affirmations for Dafydd Days:
- Rest is not giving up - it's necessary
- My body is doing the best it can
- Tomorrow might be different
On Dafydd Days, the blog posts are shorter because everything else has to be. That's just how it is when your body says "absolutely not today."
Love, Sha x
#WheelyHappyDays #DafyddDays #ChronicFatigue #FNDLife #RestIsNotLazy #WheelchairLife